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of people with spinal cord injuries have urinary complications, like incontinence or increased frequency, which can have a major effect on a person’s health and happiness.
The research teams at the Universities of Michigan, Minnesota, and Utah have created a study to examine how patients feel about their bladder management options. We hope to discover not only what does and does not work, but how to provide better care for people with spinal cord injuries in the future.
Once it is determined that an individual meets the study criteria there are just a few steps to take.
Participants will spend about 30 minutes over the phone with a research coordinator, answering questions about their past health, medications, surgeries, spinal cord injury and bladder management. Participants will also be asked to sign a consent form and a form about health information privacy. Don’t worry; there will be plenty of time to ask questions too!
Following the enrollment interview, participants will receive an email that will contain a link to questionnaires about their spinal cord injury, bladder management and quality of life. This site can be accessed via computer, tablet, or smartphone any time, day or night. The questionnaires should only take about 30 minutes to complete. Participants will continue to receive these questionnaires every three months for a year.
You will receive $50 after your enrollment questionnaires and an additional $50 once all surveys have been fully completed at the end of one year.
Participation in this study is voluntary and participants can withdraw at any time.Enroll Today! Research Specifics
Jason Hall one of our patient stakeholders talks about the importance of this study and PCORI
The study kick-off meeting was held October 21st at the Hilton Hotel in Salt Lake City.
The first component of the meeting was to educate.
Educational components of the meeting included: educating study personnel about spinal cord injury and bladder management, the study objectives, and education for all about living with spinal cord injury from our patient stakeholder research partners.