Find out how you can help us learn more about bladder management; what works, what doesn’t, and what makes you happy
Drs. Sean Elliott and Blayne Welk, both members of the Neurogenic Bladder Research Group (NBRG), have received research funding through a generous grant from the Pedal with Pete foundation, an organization dedicated to advancing research in CP. The organization was founded with the goals of preventing, treating and hopefully curing CP. Pedal with Pete’s founder has always been determined to demonstrate that a handicap doesn’t have to equate to a limitation. Under his leadership, this foundation has raised over $800,000 for CP research and is well on its way to the goal of $1,000,000.
Once it is determined that an individual meets the study criteria there are just a few steps to take.
Participants will spend about 15 minutes over the phone with a research coordinator, answering questions about their past health, medications, surgeries, and bladder management. Participants will also be asked to sign a consent form and a form about health information privacy. Don’t worry; there will be plenty of time to ask questions too!
Following the enrollment interview, participants will receive an email that will contain a link to questionnaires about bladder management and quality of life. This site can be accessed via computer, tablet, or smartphone any time, day or night. The questionnaires should only take about 30 minutes to complete.
Two weeks after completing the initial set of questionnaires, participants will receive a second email with a link to additional questionnaires. Upon completion of these questionnaires, participation is complete
Participation in this study is voluntary and participants can withdraw at any time.